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A year ago, 36-year-old Jonny Kennedy died. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) - which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonizing sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. |
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| Ratings: | IMDB: 8.8/10 | |
| Released: | January 1, 2004 | |
| Runtime: | 50 min | |
| Genres: | Documentary | |
| Countries: | United Kingdom | |
| Companies: | Yipp Films Ltd. | |
| Cast: | Nell McAndrew Edna Kennedy Jonny Kennedy | |
| Crew: | Patrick Collerton | |
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